Entirely Emmet

What a Spoony Sees… The Reality of Invisible Illness.


Pain, pain GO AWAY,


Come again some other day.


I don’t want to sit here bitchin’,


I need to crack on with my stitchin’.


I’ve got a pile of WIPs to do,


How can I, when I’m feelin’ poo?


My head is pounding, kids are yelling


Even my name, I’m strugglin’ spelling


The house is a tip, the washing piled high


Visitors call, they wonder why.


The reason you see is my spoons are low,


It’s difficult cos I don’t CHOOSE to go slow.


My pain is restrictive, distracting, intense


I’m grumpy, I’m weepy, I mean no offense.


The sun outside shining up high in the air


I want to take kids out and play without care.


I love them so deeply I don’t want want an excuse


To justify why I’m almost a recluse,


But whatever I do I must calculate well


or tomorrow and rest of the week will be hell.


For ONCE, to wake up and have spoons to spare,


Hopes of mornings like this I do not dare


Cos my pain is part of me, love it or not.


I’m not perfect or flawless, I am what I’ve got.


Maybe one day I’ll wake up, not need to count spoons


And run around giggling, real fast, like a loon.


Without fear of tomorrow or later tonight


When my spoons suddenly vanish, far far from my sight.


For now, I will settle for patience enough


To not be bad tempered with those that I love.


 


Inspired by The spoon theory explanation of “Invisible Illness” 

http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

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